SURGICAL NEC
Meet the Families affected by Surgical NEC
"1 in 4 babies diagnosed with NEC will require surgery, 3 in 5 babies that has surgery for NEC will require an additional surgery"
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Maia's Story
Maia was born at 35 weeks, by day 3 something just didn't seem right and I was in the hospital room when my husband phoned me to come back to the special care unit urgently . This is when I first heard the word NEC . I was told my baby was to be transferred urgently to the sick kids where her case would be reviewed. Read More...
Sam's Story
​Hi This is Sam, Sam was doing great, we was waiting for a bed at our local hospital. We left him at 2 by 3:30 we had a phone call to say he was unwell. We went back to the NNU and was greeted with Sam has NEC again, he'd already had it once and had managed to be treated with antibiotics this time he was ill so much quicker. Read More...
Samuel's Story
My little boy Samuel was born suddenly at 23 weeks and weighed 1lb 4oz.
He seemed to be doing really well for the first 2 days and then he had a bleed on the brain and his lung collapsed at the same time. He recovered from it quite quickly however we were told he had a PDA which would 1st be treated with medication (which didn't work). At just under 2 weeks old and weighing 1lb 6oz Samuels tummy turned blue and he got rushed to another hospital for urgent surgery. Read More...
Thomas's Story
Our son Thomas was delivered at 26 weeks by Caesarean, weighing 1lb12oz. Mum Louise had pre-eclampsia & was very sick. For a while both where in intensive care. After a couple of days I had a call from NICU to say that Thomas had taken a big turn for the worse. He was a horrible colour & was on a cocktail of antibiotics. Read More...
Niamh's Story
Niamh was born full term on 26th November 2016, she was healthy and thriving and a very content little baby girl.
On 26th December 2016 at one month old Niamh began bleeding and having loose bowel motions at that point there were no other symptoms. We brought her to the local emergency department at the Royal Belfast Hospital for Sick Children she was assessed and they sent her home assuming she had a milk allergy, however a few hours later Niamh became very unwell and was rushed back to the emergency department where she was diagnosed with having sepsis caused by Necrotising Enterocolitis.